National Vitiligo Foundation, Inc.

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Volunteer of the Year



WELCOME

TO THE

NATIONAL VITILIGO FOUNDATION

 
The National Vitiligo Foundation offers a wealth of current, accurate, and easy to understand information about vitiligo.  We strive to enable people with this disease to make the best choices for themselves and their families, and to serve as a one-stop resource for both the medical and scientific community.

Why become a member of the Foundation?  Your membership empowers us to serve as a collective voice to implement our mission of increasing awareness, patient services, and research for vitiligo.  When we stand united as thousands, we become a powerful force for change.


Why donate to the Foundation?  Your tax-deductable contribution is needed to support research focused on treating vitiligo and on finding a cure, to help with development of educational materials for the public and the medical profession, and to help the Foundation advocate for changes in government funding and insurance coverage. During its 24 year history, the Foundation has awarded nearly 1.5 million dollars in research grants because of the generosity of its members.  Please consider making a donation so that the NVF can continue making a difference in the fight against this disease.
 

NEW TO THE NVF WEBSITE

  • PARTICIPANTS NEEDED - New Study on Use of Micrografting for Repigmentation of Vitiligo is being led by Dr. Alexandra Kimball, MD at Massachusetts General Hospital. More details can be found here (updated October 2011).

  • The August 2011 newsletter is now available (updated September 2011).

  • The bibliography list of published articles on vitiligo now contains March - June 2011 publications (updated September 2011).

  • Heather Marsh is the 2011 Volunteer of the Year (updated July 2011).

  • The June 2011 President's Message about key developments is now available (updated July 2011).

  • PARTICIPANTS NEEDED - International Study to Find Vitiligo Genes. Dr. Richard Spritz needs an additional 3000 people with vitiligo to help him with work on identifying genes that cause this disease. Please consider helping him in this pivotal work by filling out a questionnaire. More details and the questionnaire can be found here (updated May 2011).

  • PARTICIPANTS NEEDED - An Online Health Survey of Patients with Vitiligo is being sponsored by Dr. Nanette Silverberg, MD (Departments of Dermatology, St. Luke's-Roosevelt and Beth Israel Medical Centers, New York, NY) to review medical, genetic, psychological and nutritional factors that may cause or exacerbate vitiligo. Click here for additional info on how to participate (updated January 2011).

  • Clemson University ETV Radio "Your Day" audio broadcast on vitiligo posted on our Media page (an excellent overview).

  • The NVF has created an opportunity with Cover FX, which makes corrective makeup for vitiligo and other skin conditions.  NVF members receive 10% off Cover FX's Vitiligo Coverage Kit.  The Foundation receives 10% of sales to help fund research on treatments and a cure.

  • An outstanding new book on vitiligo (edited by M. Picardo and A. Taieb) is available on our Publications page.

  • A Vitiligo Road Map showing the location of, and providing information about, global centers of vitiligo research is available.
     

COMING SOON...

  • Updated physician directory.
     

  • Additional vitiligo centers to be posted on the Vitiligo Road Map.

 

"The National Vitiligo Foundation offers the vitiligo patient the assuredness that they are not alone and that a reputable organization is working hard to fund better treatments and eventually a cure. So many live with this disease without a sense of hope and often feeling alone. They are ecstatic when they discover the NVF is staffed with dedicated people who passionately care about their well-being. The NVF has proactive programs and services that truly do offer hope and that improve the well-being of vitiligo patients everywhere."

                    Allen Locklin - NVF Founder and Friend






 


 

Heather Marsh
is our 2011 NVF
volunteer of the
year!  Click here
to read about her.

  Heather Marsh

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